CRPS or Chronic Regional Pain Syndrome is best described by the very definition. The pain is Chronic (constant), Regional (in a specific area or extremity) Pain (it damned well hurts). This is my life with CRPS, oh joy of joys.
Sunday, October 26, 2014
October 26th, 2014 - Sunday
The weather is starting to turn colder and and the days shorter so my days grow more and more painful. I need my meds today. Pain scale 9 3/4. Not much else to write about today.
Friday, October 24, 2014
October 24th, 2014 - Friday
For years the words "Thank God It's Friday" have resided the on lips of those that have had a long week, or they just need a day or two off from the hustle and bustle of their lives. While its true that I have uttered those same words, today, this Friday, is not one of those days. My neck has decided to flare up again and my arm has been a constant for its level of pain.
I had a fall almost a week ago in which I landed on my arm in which has given way to the fear that I did "crack" or fracture the stupid thing. It did swell and there was some bruising that was present, and it was my bad arm so I'm not sure if I just aggravated the crap out of it or if it really was broken to some extent. All I know is that it gave that little extra "special" shot of pain that has exacerbated the whole pain scale.
As for my neck I still believe that the pain that I have in residence there still makes me think that the CRPS has migrated or expanded itself. I've had those episodes that we all have had whereby it hurts to turn your head and this does have similar symptoms but this has lasted far to long. I'm not sure what to think any more.
The pain level today is about a 9 - 9 1/2 in the arm and a good 9 1/2 in the neck. Awesome. TGIF my rear end.
I had a fall almost a week ago in which I landed on my arm in which has given way to the fear that I did "crack" or fracture the stupid thing. It did swell and there was some bruising that was present, and it was my bad arm so I'm not sure if I just aggravated the crap out of it or if it really was broken to some extent. All I know is that it gave that little extra "special" shot of pain that has exacerbated the whole pain scale.
As for my neck I still believe that the pain that I have in residence there still makes me think that the CRPS has migrated or expanded itself. I've had those episodes that we all have had whereby it hurts to turn your head and this does have similar symptoms but this has lasted far to long. I'm not sure what to think any more.
The pain level today is about a 9 - 9 1/2 in the arm and a good 9 1/2 in the neck. Awesome. TGIF my rear end.
Sunday, October 19, 2014
October 19th, 2014 - Sunday
Quite the day today. Despite the fact that the Bears lost and my son called incessantly about printing his homework (just four times in 10 minutes) and our dog paced over and over to the point of his exhaustion as he searched for my Mom's cat to play with, the day was marred with an event that happened the day before.
On Saturday, October 18th, 2014 our daughter had her Senior pictures taken and we had some family pictures taken at the same time. As the session ended, I had a fall and I stuck my left hand out to break my fall, my bad arm. I say that I "Humpty Dumpty'd" and that is a pretty safe analogy because I crumbled like an eggshell when I hit the ground. My wrist is in so much stinking pain right now, I want to cry. It's swollen, black and blue a little and it throbs like one of those cartoon thumbs that would swell up when it was hit with a hammer. I have a horrific week ahead and the last thing I needed was this to happen.
Pain scale is damned close to a 10 and my night hasn't gained any relief from the stupid injury. The EMT in me and my own ability to downgrade injuries of mine are at odds right now. I need my pain meds, and sleep but my meds keep me awake so... Sleep is but a mere dream which is ironic if you really think about it. My neck still hurts, I have to be careful how I turn it and how fast I do so as well.
On Saturday, October 18th, 2014 our daughter had her Senior pictures taken and we had some family pictures taken at the same time. As the session ended, I had a fall and I stuck my left hand out to break my fall, my bad arm. I say that I "Humpty Dumpty'd" and that is a pretty safe analogy because I crumbled like an eggshell when I hit the ground. My wrist is in so much stinking pain right now, I want to cry. It's swollen, black and blue a little and it throbs like one of those cartoon thumbs that would swell up when it was hit with a hammer. I have a horrific week ahead and the last thing I needed was this to happen.
Pain scale is damned close to a 10 and my night hasn't gained any relief from the stupid injury. The EMT in me and my own ability to downgrade injuries of mine are at odds right now. I need my pain meds, and sleep but my meds keep me awake so... Sleep is but a mere dream which is ironic if you really think about it. My neck still hurts, I have to be careful how I turn it and how fast I do so as well.
Labels:
2014,
CRPS,
October,
Pain Scale,
Pinched Nerve
Friday, October 10, 2014
October 10th, 2014
A few days have passed between now and my last post. Not many changes really, I just hurt. I'm fighting every day trying to feel better and I added even more on my plate by going back to school. Its online but that is another dimension to my world. Its getting colder, frost warning tonight I hear but its not only the cold that affects me, dampness, humidity those are my nemesis's I fear. The neck is still hurting too. The problem is that when I turn my head it feels like a screwdriver is against my neck and when its turned I can barely take it. Pain is remaining at that 9 1/2 realm still. Awesome.
Monday, October 6, 2014
October 6th, 2014 - Monday
Interesting day. I need to get some writing done and I'm in a terrible place pain-wise right now. I slipped getting out of the shower and I effectively smashed against my arm, my bad arm. Its not bruised yet but my sweet Irene does it freaking hurt. So to top it all off my neck still hurts and is limiting my mobility (turning my head). It hurts like a bear. All together, 9 1/2ish today. Happy October.
Wednesday, October 1, 2014
October 1st, 2014 - Wednesday
Pain is still having a blast with me. Its still its same old static 9 1/2, it was at least. I had a fly aggravating me and I swatted at it and I hit my bad hand. Its like licking lightning, its a freaking killer. My neck hurts still but I can turn it at least. I'm going to try to do a little writing I think.
Tuesday, September 30, 2014
September 30th, 2014 - Tuesday
Pain level is the same as usual. The weather is weird. One minute its cold then the next its hot so that is playing tricks with my arm. September is a mere afterthought now, hopefully October will bring some relief! Pinched nerve still exists in some capacity too so that makes it even more fun. 9 1/2 out of 10.
Monday, September 29, 2014
September 29th, 2014 - Monday
The pinched nerve in my neck seems to have dissipated a little but it still reminds me that it is there. As for the arm its freaking painful right now. Looks like this September will be ending the same way it has for the last six. I hate this crap.
Thursday, September 25, 2014
September 25th, 2014 - Thursday
My neck still hurts like a bear but I am moving it more. My arm is much different, the pain is as it always is: In nightmare mode. Probably 9 1/2 today (left arm). Neck is probably 7 or 8. I'm sick and tired of hurting each and every day. Six years and seven months ago I got hurt and it has never stopped hurting. I hate this crap.
Wednesday, September 24, 2014
September 24th, 2014 - Wednesday
I'm still thinking that this pinched nerve is somehow related to my CRPS. It hurts almost as much and touching it is like resting on a hot grill. My pain for the day is static, I feel as crappy today as I did yesterday. I'll try to write a little, maybe that will help somewhat. CRPS sucks eggs.
Tuesday, September 23, 2014
September 23rd, 2014 - Tuesday
Despite the fact that the Bears won last night my day hasn't been very good. My CRPS never plays nice as it is but its been exacerbated by a pinched nerve in my neck. I feel even worse than ever and I have to start to worry / wonder whether or not this could be my CRPS expanding its territory. That would be about as much fun as swimming in the ocean in the middle of a chum slick with great white sharks swimming at my feet. In all honesty if this is expanding I won't have a freaking clue as to what to do. Pain level is 9 1/2 at least.
Monday, September 22, 2014
Spetember 22nd, 2014 - Monday
September 22nd, 2014 is just about like any other day for me. I'm in pain, I really, really, really freaking hurt today. As if to pile on more ickyness, I have acquired a pinched nerve in my neck. It started Friday night, exploded Saturday night, maintained its stranglehold Sunday and today it remains. This thing really sucks, it has a serious hold on me right now. Pain meds only work to the extent where the appreciable level of relief is measured in a single grain of sand in the deepest regions of a desert.
Thursday, September 18, 2014
September 18th, 2014 - Thursday
Typical day. I still feel like crap, pain is extraordinarily high 9 1/2. I really hurt. I'm beaten down, exhausted and I need rest. Won't happen anytime soon me thinks.
Wednesday, September 17, 2014
September 17th, 2014 - Wednesday
Typical day here I think. I'm trying to write and at the same time my pain is telling me to do nothing. It sucks. I haven't felt good in six and a half years because of this crap. I feel sick to my stomach, not because of food, I haven't eaten anything except for a handful of raisins today, instead I hit my arm against a table and I feel like I want to vomit because it hurts so bad. I can't come up with a pain scale today. I still have to go to Sam's Club tonight so I hope this goes away soon.
Tuesday, September 16, 2014
September 16th, 2014 - Tuesday
I had a long weekend. I went to Riot Fest in Chicago, a MASSIVE punk /metal festival that fills Humboldt Park with thousands of music fans. To make it slightly easier we decided to take public transportation and that helped me a little. The weekend has kicked my arse, I'm in so much pain. The music was great and so was the festival but it was full of being hit by people just walking, terrible rain and cold and serious dehydration.
Pain level is as close to the worst I have felt since I was diagnosed. I'm trying to write about the music but its pretty hard.
Pain level is as close to the worst I have felt since I was diagnosed. I'm trying to write about the music but its pretty hard.
Saturday, September 13, 2014
September 13th, 2014 - Saturday
The day was really, really long today. We went to Riot Fest in Chicago Friday (it ends Sunday) and the weather kicked my arse on Friday because of the rain and cold and according to the forecast it was going to be a nice day Saturday. It was a great sunny day but chilly until nightfall. To start the day however involved a train ride from Rosemont, Illinois to Logan Square in Chicago and the ride was without incident. We thought we had the whole thing planned out pretty well, taking a bus to Humboldt Park but we couldn't figure out which direction to go.
We were looking at a map at another bus stop and a person overheard us. He was very helpful but he was a little off with his idea of a short walk to the park and how long he said it would take. Long story short we had a very nice, very long walk down Kedzie Avenue which had some awesome architecture to look at. The "ten minute walk" was off quite a bit but it was still a nice walk.
My arm got hit a ton of times which made the day even longer and when it got cold which affected the arm even more. To make things even worse the pinched nerve in my shoulder/neck are making things worse. The pain level is high, 9 1/2 (minus the pinched nerve). Meds are on onboard now so here's to hoping that they kick in SOON.
We were looking at a map at another bus stop and a person overheard us. He was very helpful but he was a little off with his idea of a short walk to the park and how long he said it would take. Long story short we had a very nice, very long walk down Kedzie Avenue which had some awesome architecture to look at. The "ten minute walk" was off quite a bit but it was still a nice walk.
My arm got hit a ton of times which made the day even longer and when it got cold which affected the arm even more. To make things even worse the pinched nerve in my shoulder/neck are making things worse. The pain level is high, 9 1/2 (minus the pinched nerve). Meds are on onboard now so here's to hoping that they kick in SOON.
Friday, September 12, 2014
September 12th, 2014 - Friday
I spent a pretty long day in Chicago. It was cold, rainy and of course the ONLY arm I couldn't keep dry was my bad arm. I had on two shirts, a polyester Blackhawks jersey and a jacket and somehow the rain got through to my freaking elbow and down through the wrist. There was no way possible that it could happen and my shoulder and upper stay dry.
I hurt like a bitch right now, but my meds are on board so hopefully I will be able to sleep. The music I saw was great and the freaky people made it even better. It was cold and rainy and it made everything a giant mud pit. Pain before the day started around a nine and now just about ten.
I hurt like a bitch right now, but my meds are on board so hopefully I will be able to sleep. The music I saw was great and the freaky people made it even better. It was cold and rainy and it made everything a giant mud pit. Pain before the day started around a nine and now just about ten.
Thursday, September 11, 2014
September 11th, 2014 - Thursday
Crappy day across the board today. Not only is it the anniversary of the attacks on September 11th but its cold. My arm is hypersensitive to hot temperatures as well as cold temperatures too. The damn pain is probably a 9 1/2 and I can't get any relief today. My left hand feels like its on freaking fire and it is throbbing. I'm going to try to do some writing but this crap is really distracting. CRPS you nasty little bastard, leave me ALONE!
Tuesday, September 9, 2014
September 9th, 2014 - Tuesday
Long day today. I fell asleep last night without taking my meds and I am paying for it right now. The morning meds are on-board at least. I don't feel good right now, I really, really hurt. Pain level is about 9 1/2. I'm trying to do some writing and it's not going well.
Monday, September 8, 2014
September 8th, 2014 - Monday
Its been a long day. I'm exhausted. My pain isn't managed well right now, its really getting to me. I did get a haircut and I wrote a little. My arm is doing its best to spasm me out of my mind and the pain level is around 9 today despite the cooler weather and light humidity. CRPS is a like leech, it sucks the life out of you. I flat out hurt.
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